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Alina: our CDH story

Sunday, 8 January 2012

Alina Christmas pictures














































Posted by Alex, Ingrid and Alina Houchin at 02:49
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Alina post op

Alina post op

About us

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Alex, Ingrid and Alina Houchin
Oxted, Surrey, United Kingdom
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Reasons for starting this blog

Our journey started after our 12 week scan, when we were told that Alina might have congenital diaphragmatic hernia. We had never heard of this condition and didn't know what to think of it. In the meantime, thanks to some wonderful parents, doctors and midwives we've accumulated a wealth of information which we would like to share with those whose loved little ones have been diagnosed with CDH.

Many thanks to those who helped

*Prof. Nicolaides and the Feto team at King's College Hospital
*Prof. Davenport and the Surgical team at King's
*The doctors and nurses in NICU at Kings
*The doctors and nurses in PICU at Kings
*Angie Partridge, screening coordinator East Surrey Hospital
*Helena Goldberg, MSC, Oxted Health Centre
*The doctors and nurses in Pediatrics, East Surrey Hospital
*Una Kularatnam, House Manager, Ronald McDonald Camden
*Neonatal Ambulance Services
* Roz Foundajames, Oxted Physiotherapy Centre

CDH Awareness Ribbon

CDH Awareness Ribbon

General research about CDH

  • FETO for severe congenital diaphragmatic hernia: evolution of a technique and preliminary results
  • Fetal lung-to-head ratio in the prediction of survival in severe left-sided diaphragmatic hernia treated by fetal endoscopic tracheal occlusion (FETO).
  • Fetal lung volume after endoscopic tracheal occlusion
  • Prenatal diagnosis, prediction of outcome and in utero therapy of isolated congenital diaphragmatic hernia.
  • Prediction of outcome in isolated congenital diaphragmatic hernia and its consequences for fetal therapy.
  • Research on tracheal occlusion for severe cdh

Genetic studies/articles

  • Deletion of Xp and CDH (2011)
  • Genomic alterations contributing to CDH (2011)
  • Recurrent microdeletions of 15q25.2 and CDH (2010)
  • Chromosomal 8p23.1 deletion and CDH (2009)
  • Candidate genes for CDH (2007)

Foundations

  • Dhreams genetic CDH study
  • The Parker Reese Foundation (US)

Little Cherubs

  • Ava ~ Hope for Congenital Diaphragmatic Hernia! (USA)
    Taking on a Challenge!
    5 weeks ago
  • Baby Burnside (due August 4th)
    2 years ago
  • Baby Carter (USA)
    Half-way to TWO! (or 18 months)
    1 year ago
  • Baby Claire (USA)
    New Blog
    2 years ago
  • Baby Dellinger
    Who Knew??
    2 years ago
  • Baby James Reeve CDH Journey ( UK)
    Catch Up
    2 years ago
  • Blog spot - IMOGENDYSON.CO.UK (UK)
    Christmas 2011
    4 weeks ago
  • CDH - Kaden Brown
    Flying Colours
    1 year ago
  • Davis Michael Ashworth (USA)
    Home and Happy
    2 years ago
  • Fer's Blog (Mexico)
  • Keepin Up With The Vierigs (USA)
    II MHG Christmas Party
    1 year ago
  • Little Georgia On My Mind (Canada)
    Happy Balentine’s Day!
    2 weeks ago
  • Liviana (USA)
    Living and Loving
    4 weeks ago
  • Loving our Ireland Rose( due August 23rd)
    It's been a year
    1 year ago
  • Nayeli Faith Nelson (USA)
    Nayeli 3 year pics
    3 months ago
  • Our CDH story of hope
    Thank You
    2 years ago
  • Our family's journey through life
    10 months ago
  • Our Little Sunshine's CDH Journey
    New Year, not so new Lewis :s
    1 month ago
  • Owain Douglas (USA)
    The Mysteries of the Tech Age
    1 year ago
  • Owen (USA)
    In Like a Lion
    4 days ago
  • Ruby Hope (USA)
    just to add to the fun
    4 days ago
  • Sofia (USA)
    Thank You!
    11 months ago
  • The Curtis Family Updates (USA)
    Happy Birthday Seth
    10 months ago

Little Angels

  • Baby Avery
  • Baby Kaden Kuehl
  • Angel Skyla
  • The Miles Family
  • Baby Virginia Addison
  • Baby Maxton
  • Baby Joseph
  • Elli
  • Joel's story

Some useful CDH websites

  • Useful CDH video from the US
  • Cherubs
  • UK Cherubs

Other blogs we follow

  • Baby Alina
    Nursery Update
    2 weeks ago
  • Corin's Crazy Life
    Twin Checkup Update
    1 year ago
  • nifti
    original designs
    4 years ago
  • The Bennetts

Followers

Blog Archive

  • ▼  2012 (11)
    • ►  March (1)
      • Extubation, reintubation and re-reintubation
    • ►  February (6)
      • one step back
      • Robbie: SIMV
      • Robbie: PTV
      • Robbie: latest update
      • Robbie: 2 days old
      • Robbie is coming imminently
    • ▼  January (4)
      • Robbie: last scan before balloon removal
      • Robbie: little scare
      • Alina Christmas pictures
      • Robbie: 3 weeks post balloon
  • ►  2011 (10)
    • ►  December (2)
      • Alina 3 years old
      • Balloon
    • ►  November (3)
      • 2nd baby, 2nd balloon
      • Scan
      • Pregnant with CDH baby no.2
    • ►  July (1)
      • 2 1/2 years old
    • ►  May (1)
      • 2 years and almost 5 months
    • ►  April (1)
      • 2 1/4 years old and last check-up at the hospital
    • ►  March (1)
      • Happy Pancacke Day
    • ►  February (1)
      • 2 years and 2 months old
  • ►  2010 (14)
    • ►  November (1)
      • 22 months
    • ►  September (1)
      • 21 months
    • ►  August (2)
      • Weekend pictures- Godstone Fair
      • 20 months old
    • ►  July (1)
      • 19 months
    • ►  June (1)
      • 18 months
    • ►  May (2)
      • 17 months
      • 16 months and volcanic ash
    • ►  April (2)
      • 1st steps
      • Happy Easter!
    • ►  March (1)
      • 15 months
    • ►  February (1)
      • 14 months
    • ►  January (2)
      • 13 months
      • 1 year old
  • ►  2009 (38)
    • ►  December (1)
      • Almost one
    • ►  November (2)
      • Little Miss
      • Pneumonia
    • ►  October (4)
      • Last night
      • ILL
      • 10 months old and crawling away
      • Updates
    • ►  September (2)
      • Hola
      • Growing up
    • ►  August (1)
      • Sitting up and puffing away
    • ►  July (4)
      • 7 months and quick update
      • Please pray for Baby Alex Burnside
      • Healthy again
      • Tonsilitis
    • ►  June (2)
      • 6 Months
    • ►  May (1)
    • ►  April (2)
    • ►  March (5)
    • ►  February (6)
    • ►  January (8)
  • ►  2008 (22)
    • ►  December (11)
    • ►  November (3)
    • ►  October (3)
    • ►  September (5)